29 February 2012 marks the 5^th International Rare Disease Day, coordinated by EURORDIS and organised with rare disease national alliances in 25 European countries. On this day hundreds of patient organisations from more than 40 countries worldwide are organising awareness-raising activities converging around the slogan "Rare but strong together".

Find out how you can get involved.
www.rarediseaseday.org

Launch of E.S.PKU Benchmark Report
'Closing the Gaps in Care'
Wednesday, 29 February 2012, European Parliament
12.00 – 14.30

To mark World Rare Disease Day on Wednesday 29 February, the European Society for PKU (E.S.PKU) alongside MEPs Esther de Lange and Antonyia Parvanova have the pleasure to invite you to the launch of E.S.PKU’s Benchmark Report – 'Closing the Gaps in Care', which compares access to and quality of care in five European countries: the UK, Spain, Sweden, the Netherlands and Poland.

Please register by Friday 17 February by e-mail to schauvet@webershandwick.com
For more information on E.S.PKU: www.espku.org

Epposi’s Advanced Innovation Programmes are designed to make a positive contribution to European health policy-making by providing members and the wider public with high quality independent research, capacity-building, knowledge exchange and dissemination with the aim of bridging the gap between innovation and improved public health outcomes.

Programme constitution is agreed in accordance with Epposi's equally weighted governance structure between patients’ organisations, science and industry. Representatives from each stakeholder group closely consult with the Secretariat in establishing the strategic direction of the programme and provide expertise to help shape research parameters and event content. Day-to-day management and delivery of the programmes is carried out by Epposi's Brussels secretariat.

Epposi is focusing on four key areas in 2011-2013:

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